The family of a little boy in Florida who was born with a partially formed skull has created a foundation to honor their son and raise money for research of the incurable condition that threatens his life.
Jaxon Buell, of Orlando, Fla., was born Aug. 27, 2014, and was diagnosed at birth with microhydranencephaly, a developmental abnormality marked by incomplete brain and skull formation. According to the National Institutes of Health (NIH), scientists don’t know what causes the condition nor have they found a cure.
The Buells have said they faced criticism for not aborting their son, but today, 20-month-old Jaxon has defied the odds to celebrate many of the milestones typical of a boy his age. As he has grown, Jaxon’s family has updated supporters on
“We keep waiting for it to kind of disappear and Jaxon be a 'flavor of the week'— but [the media attention] is not going away,” Brandon Buell said at the time. “It is surreal, it’s humbling, overwhelming and odd to be about our family and our son, but he certainly deserves it.”
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